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Dedicated to conducting clinical research in different forms of CMT and improving the care of patients.

 

 

Research Studies

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Patients and researchers working together moves CMT research forward, making it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.

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Rare Research Report: November 2023

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Rare Research Report: October 2023

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Training Program for Clinical Research in Rare Disease Launches New Session

The National Institutes of Health-funded R25 Rare Disease Clinical Research Training Program is launching a new training program for clinical research in rare disease. Now in its seventh year, this year-long, hybrid, free program is designed to support new investigators in the field of rare disease clinical research.

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant