Dedicated to conducting clinical research in different forms of CMT and improving the care of patients.

You Can Help
Patients and researchers working together moves CMT research forward, making it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.
Find a StudyRare Research Report: August 2025
Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for August 2025.

$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network
Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.

Pre-Doc Preparatory Program (P³) in Translational Research
Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and translational research?
