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Dedicated to conducting clinical research in different forms of CMT and improving the care of patients.

 

 

Research Studies

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Patients and researchers working together moves CMT research forward, making it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.

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Rare Research Report: January 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.

FDA-NIH Rare Disease Day. February 27-28, 2025

Rare Research Report: October 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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