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Patient Advocacy Groups

Patient advocacy groups are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.

ACMT-Rete logo

ACMT-Rete per la malattia di Charcot-Marie-Tooth

Supports Charcot-Marie-Tooth patients and their families with dedicated actions and research to increase awareness and quality of life.

CMTA logo

Charcot Marie Tooth Association

Funds Charcot-Marie-Tooth (CMT) research and works to improve quality of life for all CMT patients.


Charcot-Marie-Tooth UK

Supports people living with Charcot-Marie-Tooth disease in the United Kingdom by providing personal support, advice, and information.

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CMT Research Foundation

This patient-led, non-profit foundation is focused exclusively on addressing treatments and cures for Charcot-Marie-Tooth disease.


Fondazione Telethon

Founded in 1990, Fondazione Telethon conducts fund raising activities to support research projects that aim to advance the treatment of rare genetic diseases.

HNF logo

Hereditary Neuropathy Foundation

Works to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families, and fund research.

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Muscular Dystrophy Association

Supports efforts to transform the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases.